Seminar: Participation and partnership? Experiences of engagement in precision oncology
Seminar organized by the Centre for Medical Science and Technology Studies.
with Professor Sarah Cunningham-Burley
University of Edinburgh
Precision medicine’s mantra of participation and consumer driven health care constructs particular spaces for engagement and responsibilities around what it means to be a patient in the genomic era. Yet, participation and partnership enact processes of inclusion and exclusion in the crafting of a future when disease – in this case cancer – is expected to become more controlled through ‘the right treatment for the right patient at the right time’. Drawing on a four year project focusing on developments in genomic medicine and cancer, this paper explores the multiple ways in which people affected by cancer negotiate and experience spaces for participation, including clinical encounters, representative activities and through sharing information in online fora. Read more